Huppert backs campaign to help Muscular Dystrophy sufferers

May 25, 2010 12:11 PM

Julian HuppertCambridge MP Julian Huppert has pledged his support to Muscular Dystrophy sufferers in their fight for better health services.

Julian has signed up to the Muscular Dystrophy Campaign's Manifesto for Muscle which calls on MPs to help raise awareness of muscle-wasting conditions in Parliament and with regional health officials.

One of the pledges Julian made was to meet with families in his area who are living with muscle disease and to back them in their campaigns to secure more healthcare investment from the NHS.

In the East of England the main issues facing muscle disease patients are:

• a lack of information and support at diagnosis

• a complete absence of ongoing physiotherapy

• withdrawal of vital services once a patient reaches adulthood

• difficulty accessing existing facilities, particularly hydrotherapy pools, which significantly improve many patients' quality of life

• obstacles to receiving specialist equipment such as wheelchairs.

Julian said: "I made this commitment to supporting muscle disease patients and their families because I believe they need and deserve much better healthcare. I'm now keen to take up the challenge of helping these people fight for better care and services, and hope I can be of use in the campaigning work they do."

The Muscular Dystrophy Campaign's head of policy and campaigns Nic Bungay said: "We are very grateful for Julian's support in our fight for better muscle disease services in the East of England. It will lend real weight to our campaign and means a lot to constituent families living with muscle disease."

To find out more about the Muscular Dystrophy Campaign and its work in the East of England go to www.muscular-dystrophy.org.

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